Wednesday, March 13, 2013
It's St. Patrick's Blog Crawl Time! (with an update)
...And once again, I'm late. Late getting the word out and getting this year's dishes prepared. The days and weeks sure have been sneaking up on me. I can't believe that Spring is only a week away! (I couldn't be any happier about it, mind you) The snow has finally melted and I'm hoping with every fiber of my being that the last fluffy flake has fallen. At least until December rolls around again. (although I know from experience that in my neck of the woods, we could still get a surprise attack before the season is officially over)
As the day is progressing, the fatigue is grabbing hold of me, but I'll try to get an entry up at the crawl. If I fall behind too much, the good news is that I can always save things for next year's party! :~/ The really good news, is that you all can pop over tonight and check out all of the yummy recipes, the beautiful tablescapes and the festive St. Patrick's Day ideas! Just click on the leprechaun in my side bar and you'll be on your way to Kat'leen's party! With a little (Irish) luck, I might just see you there!
Systemic Lupus Erythematosus (SLE). Okay-kee-dokie then...
Why this wasn't explained to me when I was sitting. right. there. in front of him, is a mystery to all of us. He went on to say, in a somewhat roundabout way, that my regular doctor should be the one to treat me for it. Again, OK... That sort of makes sense, because the city is a four hour drive (each way) and that can get pretty expensive, with the cost of gas and hotels and such. But, here's the thing; my local doctor is not a Rheumatologist. He does specialize in Physical Medicine and he is an adjunct professor, who teaches and practices at a well known medical college and hospital, but he referred me to a Rheumatologist because, well... that's the specialty that historically treats certain autoimmune diseases, including Lupus.
Anyway, the positive side that I mentioned, is that my doctor is beyond done with all of the lollygagging and dithering around that's been happening thus far and he's going to start treating me for Lupus. He's ordered a visual field test, which I've learned is a common practice before prescribing a medication called Plaquenil (cyclophosphamide). I'm still researching the stuff, so I can't tell you a whole lot about it, but here's a link to the basics, in case you're interested. I do know that in rare cases, it can damage the retina and the vision test is done as a way of obtaining a baseline for future tests to be compared to.
I've been in a bit more of a funk than usual the last week or two, because although I'm relieved to finally have a diagnosis, it's not a diagnosis that anyone would want to get... and I'm not ashamed to admit that there are more than a few moments when I'm scared half out of my wits by it. The extent or severity of this illness is unknown at the moment and as the old adage goes, only time will tell. So, that's where we are at the moment. I see long days and equally long nights, a great deal of reflection and prayer and hopefully, in the not too distant future, better days ahead. Thanks for listening. XOXO